• December 8, 2008 at 9:17 pm

    😕
    Hi my name is Terry I am 45 married and a mother of 5 grown children 3 my own and 2 step. My youngest is 18. A couple of years ago i started with short term memory lose mixing up my words and like going blank. I went to an MD and nerolgist had a full work up checked for everything lymes, sizures MRI and testing. MD nero with tears in his eys said i had alzhiemers well being a RN ( I just knew he was a “quack” ) and never went back. (Denial) I then quit work moved and bought some farm animals things seemed to get better. I went back to work and did fine for a year was permoted (sp) became very fatigued and was unable to sleep memory problems and word finding came back went to new md she said i was to young to have alzheimers and said it was a migraine syndrum. Well quit work again and went with husband out of country for a few months going home in 2 weeks and plan to follow up with mamory specialist. I am very scared i will just blank out not able to follow a conversation. Trouble with finding the right words ect. Husband and daughter that came to visit are very conserned.

    I am researching everything and frontal lobe dementia seems to fit. But then I think maybe its just fibro fog form fibromilagia.

    Sorry so long angry, confused and scarred.

    Thank you for telling your stories and helping with my research

    Terry

  • December 9, 2008 at 3:52 am

    hope I have spelt that right. I am 66 yrs young, and recently been diagnosed it is a shock, and for you being so much younger I can not imagine the pain you are in at this time.IT MAY NOT BE MUCH BUT, IT HELPS ME ANYWAY, BEING ON THE PC, BEING A MEMBER HERE TO ,ASTALK TO PEOPLE WHO UNDERSTAND. iT TOOK ME A FEW MONTHS BEFORE i EVEN TOLD MY HUSBAND, I TOLD A LONGTIME GIRL FRIEND FIRST,STILL HAVE NOT TOLD ALL OF MY KIDS(4)ONLY TOLD 1.THE OTHERS HAVE THEIR OWN PROBLEMS AT THIS TIME. I DONT REALLY KNOW WHAT ELSE TO SAY,DO RESEARCH I HAVE DONE ALOT IT HELPS I THINK TO UNDERSTAND ABIT MORE,ABOUT WHAT IS HAPPENING. PLEASE REMEMBER YOU ARE NOT WALKING ALONE WITH THIS, LETS HOLD HANDS AND WALK THIS PATH TOGETHER, LOL TRISH

  • December 9, 2008 at 11:51 pm

    Terry….sorry to hear of the problems you are having and also about your fibromyalgia. Maybe the third time is a charm. I hope someone comes up with a diagnosis…..no matter what it is….because, I know you are feeling frustrated right now. I am 60 years old and was diagnosed when I was 52 with Vascular Dementia caused by multiple mini strokes. Research is good and do not give up. There are many here to help you along and also a few here who have some type of dementia. Please keep us informed and come back often. It is great that you found us and check out the http://www.alzinfo.org for more information. I will be looking forward for further correspondence from you.

    Sandy